Just a heads-up that all things PV and chronic-illness related are moving over to a dedicated blog at www.dancingintherain.me
See you there!
Mo
Wednesday, August 19, 2015
Thursday, June 25, 2015
It's been so long!
It's been a while since I wrote about what's going on PV-wise. Well, the bad news is…it's still there. The good news is…I'm down to one dose of medication every three weeks. I've been doing this for awhile now and it seems to be working well. My platelets occasionally rise when I have inflammatory issues (soy and wheat are REALLY hard to avoid, by the way), but for the most part things have been "normal."
Probably the most annoying side effect/symptom I still struggle with is fatigue. In an effort to deal with that, I've reduced my work schedule to two 12-hr shifts a week and I'm working with a trainer this summer to increase my strength and stamina. At this point, I'd have to say the workouts pretty much guarantee me a nap later in the day, but I'm hoping as my body adapts, it will get easier.
Back in May, I embarked on a 35-mile bike ride in Sonoma County…a pretty humbling experience as I used to be able to pull out 35 miles without even thinking about it, and this ride knocked me on my tush. Regardless, I'm getting out there and trying…mostly I'm trying not to feel disappointed in myself when it is obvious I'm not the same person I used to be. I guess we're all a work in progress, no?
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| Posing at the Finish Line with my good friend, Cheri! |
Back in May, I embarked on a 35-mile bike ride in Sonoma County…a pretty humbling experience as I used to be able to pull out 35 miles without even thinking about it, and this ride knocked me on my tush. Regardless, I'm getting out there and trying…mostly I'm trying not to feel disappointed in myself when it is obvious I'm not the same person I used to be. I guess we're all a work in progress, no?
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